The Cost of Care: A Deep Dive Into the Economics of Early Learning

The Cost of Care: A Deep Dive Into the Economics of Early Learning

Why Understanding the True Cost of Early Learning Matters

At Hope Haven, we believe that every child deserves access to high-quality early learning. But providing that level of care isn’t as simple as it seems. Behind the scenes, there are significant costs associated with professionalizing the early learning workforce, equipping classrooms with necessary resources, and ensuring sustainability.

Recently, our CEO, Stella Johnson, sat down with Josh Becksmith, Executive Vice President at Brown & Brown, to discuss the true price of early learning and why it’s essential to invest in a system that supports children, families, and educators alike.

Josh Becksmith, Executive Vice President at Brown & Brown and Hope Haven’s CEO, Stella Johnson

Breaking Down the Real Costs of Early Learning

There’s a growing conversation in our community about the need for a quality early learning system—yet the difference between early learning and high-quality early learning is often misunderstood. Through an in-depth cost analysis, we examined the key factors that influence the price of care, including:

✅ Compensation for Educators – Professionalizing the early learning workforce requires fair wages and benefits, including retirement contributions. Competitive salaries are a non-negotiable part of attracting and retaining quality teachers.

✅ Consumables & Resources – From crayons and paper towels to nutritious snacks, every child needs access to materials that support their learning and development. We estimate a current cost of $100–$125 per child per month just for basic supplies.

✅ STEM & Enrichment Activities – Quality education goes beyond books. Building blocks, musical instruments, and hands-on learning tools are essential to a child’s cognitive growth. These costs add up, but they’re vital for a well-rounded experience.

✅ Operational Expenses – Behind every early learning program is a team that ensures smooth operations, from administrative support to facility maintenance. Industry benchmarks suggest shared service costs range between 25-35% of total expenses.

After working through the numbers, Stella and Josh’s analysis revealed:

📌 A break-even price for a high-quality early learning program is $3,118 per child, per month—far beyond what most families or programs currently budget.

📌 To sustainably operate, programs may need to charge around $3,400 per month per child, ensuring both quality and financial stability.

📌 Quality education isn't just a cost—it’s an investment. Without the right funding model, we risk leaving children, families, and educators behind.

What’s the Solution? A Community Effort

So, how do we go from where we are today to a fully-funded, high-quality early learning system? The reality is, it takes collaboration between multiple stakeholders, including:

🪙 Government – Advocating for policies that prioritize early education funding.
💰 Philanthropic – Engaging donors and organizations to invest in sustainable programs.
🤝 Community Involvement – Raising awareness and support for the importance of quality early learning.

At Hope Haven, we are committed to working with our community to build a sustainable early learning model that supports both educators and families. Investing in young learners today means a brighter future for all of us.

Where Do We Go From Here?

The solution isn’t a simple one. Funding quality early learning requires a coordinated effort from:

➡️ Government – Advocating for policies that prioritize early education funding.

➡️ Philanthropy – Engaging donors and organizations to invest in sustainable programs.
➡️ Community – Raising awareness and support for the importance of quality early learning.

If we truly value early education, we must fund it accordingly.

Can You Estimate the True Cost? Try Our Interactive Exercise!

Think you can determine the real cost of quality early learning? Take a stab at our Cost of Care Exercise!

📅 Book a session with Stella Johnson to go through the exercise and build your own model:
(Available until April 21, 2025!)

Want Stella to present this to your civic group or organization?

She’s available to lead discussions and help stakeholders explore solutions. Reach out today to continue the conversation! 📞 Call us: (904) 346-5100

👉 Learn more: Click below to schedule your visit today!

Together, we can make quality early learning a reality for every child.

The ACT Communication Guide: Navigating Holiday and Political Conversations with Ease

The ACT Communication Guide: Navigating Holiday and Political Conversations with Ease

The holiday season often brings us closer to family, friends, and colleagues.  It can also stir up old memories, cherished traditions, and—let’s face it—occasional tension. Layer in the current political season, and you might feel the heat rising in your conversations before they even begin. We can try our best to avoid conversation with people who might be contentious, but there will be some conversations  we have to have or simply find ourselves in the middle of without knowing how we got there.  Knowing how to communicate effectively can be the difference between a harmonious gathering and an uncomfortable clash.  So, with the holidays around the corner, consider this a gift from me to you. 

Understanding the ACT Communication Guide: Accurate, Complete, Timely

The ACT Guide serves as a foundational principle for effective communication.

• A - Accurate: Communicate as accurately as possible, using facts and clarity to ensure your message is both respectful and true to your intentions. Especially in conversations around politics or sensitive family matters, accuracy can prevent misunderstandings or assumptions that could quickly spiral into tension.  Our goal is to provide the most accurate information I can.  As the kids say, “bring the receipts.” 

• C - Complete: In contentious conversations, leaving things unsaid can sometimes lead to confusion or speculation. Being complete doesn’t mean oversharing; it means giving enough context to communicate fully. For instance, if a relative brings up a political viewpoint you don’t entirely agree with, a complete response might involve acknowledging their perspective while briefly sharing yours. This helps prevent the perception of shutting them down or oversimplifying your stance.  Our goal is to give all the information required so that we don’t have to keep the conversation going unnecessarily. 

• T - Timely: Timing is everything. The holidays are already emotional, so if tensions are running high or people seem defensive, consider holding off on diving into certain topics. “Timely” also means being mindful of setting; some topics are better suited for private conversations rather than at the dinner table.  If you decide to have the conversation, then do so in a way that does not prolong it.  Say what you need to say as succinctly as possible.

By keeping these three elements in mind, you can take a proactive approach to communication, setting up a foundation that can mitigate miscommunications and keep conversations flowing smoothly.

Four Tips for Using ACT in Contentious Conversations

Here are four things to keep in mind when attempting to use ACT.

1. Keep Your Focus

In conversations that veer into political or sensitive territory, it’s easy to get distracted by unrelated comments or personal jabs. But try to stay focused on the main point of the conversation. Suppose a family member makes a comment about recent political events, and it veers into critique. Instead of defending every detail, consider responding to the central topic only, acknowledging their point while keeping your message on track. This approach can reduce the chance of escalation by keeping the conversation clear and grounded. 

Example: If a relative brings up a polarizing political issue, try to listen actively and respond with something that keeps the focus on understanding, like, “I see where you’re coming from. It’s a complex issue, and I appreciate hearing your perspective.” This allows you to show respect without needing to go point-for-point.

2. Keep Your Cool

Emotions can run high during the holiday season, especially when discussing heated topics. Although it can be difficult, aim to keep your cool. Maintaining emotional control—even if others don’t—can help you avoid adding fuel to the fire. Practice deep breathing or pause briefly to collect your thoughts before responding. Remember, you don’t have to respond immediately; taking a moment can prevent heated exchanges and ensure you respond with thoughtfulness.

Example: If a comment strikes a nerve, remind yourself that staying calm will lead to a better outcome. Try saying, “That’s an interesting point,” and take a deep breath. This response acknowledges the comment without committing to a position or reacting defensively.

3. Keep It Cooperative, Courteous, and Respectful

Holidays are about togetherness, so frame your responses in ways that maintain harmony. Being cooperative means showing a willingness to listen and acknowledge others’ viewpoints, even if you don’t agree. Courteousness can be conveyed through small gestures: maintain eye contact, avoid interrupting, and acknowledge the other person’s feelings. Respect is foundational; approach each conversation with an assumption of good intent, even if the conversation becomes challenging.

Example: When a conversation becomes tense, consider using phrases like, “I respect that you feel strongly about this” or “We may not agree on everything, but I’m glad we can have this conversation.” These phrases reflect respect and a cooperative spirit without compromising your beliefs or inviting further conflict.  As my mommy says, “if you don’t have something nice to say, don’t say it.” 

4. Keep a Positive or Neutral Perspective

Avoid jumping to conclusions about someone’s intent, and try to maintain a perspective that keeps things light or curious rather than defensive. This mindset allows you to deflect tension gracefully and can set a peaceful tone that encourages open, honest dialogue.

Example: When faced with an opposing view, try saying, “It’s interesting to hear different opinions on this,” or “That’s something I hadn’t thought about before.” Statements like these show you’re engaged and curious without adding your opinion in a way that might create friction. 

Wrapping It All Together: Making ACT Work for You

Now may your holidays be filled with conversations that make even contentious topics more manageable and, ideally, allows everyone to feel heard and respected.  Keep in mind that some differences may never be fully bridged, but respectful communication can create understanding, which is often just as powerful. And who knows? You might leave each conversation with a deeper appreciation for the people around you, regardless of any disagreements.

About the Author

P. Nate O’Brien is a mental health counselor, part-time comedian, and full-time enthusiast of well-timed dad jokes. When he’s not helping people navigate tough conversations, he’s probably debating whether pineapple belongs on pizza (he’s still undecided). Known for blending wisdom with humor, Nate believes that effective communication is like a good holiday meal—best served with warmth, patience, and just the right amount of seasoning.

Hope Haven Leads the Way with Cutting-Edge Autism Screening Technology

EarliTec Diagnostic’s EarliPoint Eye-Gaze Technology

Hope Haven is making major advancements in healthcare services by becoming the first in Northeast Florida to offer EarliPoint Autism technology to identify early autism. This groundbreaking technology enhances our autism spectrum disorder (ASD) diagnostic process for children as young as 16 months.

What is EarliPoint?

• A tablet-based tool that uses eye gaze tracking to assist in the detection of early signs of autism and developmental delays.

• Tracks where a child looks during short videos or animations.

• Analyzes eye movements to identify patterns in social engagement and communication.

EarliPoint Attentional Funnel

Why is it important?

• Early diagnosis leads to earlier intervention, which improves long-term outcomes.

• EarliPoint provides accurate, science-backed insights to help us get families answers sooner.

Struggling to secure an evaluation appointment?

• Don’t wait—schedule your free screening today!

• Visit: Hope Haven Free Screening to book your appointment and take the first step toward answers and support for your child.

Hope Haven is here to help children and families thrive.

Resources

• The Best Inventions of 2024: EarliTec Diagnostics EarliPoint - TIME

• EarliPoint Tech Will Detect Early Autism - Inside Telecom

• New Technology is Changing the Autism Detection Process - The Recorder

• Clinical Studies - EarliTec Diagnostics Inc.

Navigating Grief During the Holidays

Navigating Grief During the Holidays

Embracing the Reality of Holiday Grief

The holiday season is often seen as a time of joy, connection, and celebration, but for many, it’s a period of intense emotional struggle. For those grieving a loss, the holiday season can amplify feelings of sadness, loneliness, and longing, often in ways that feel unexpected or isolating. Despite the cultural pressure to engage in festivities, it’s crucial to acknowledge that it’s okay to feel a mix of emotions during this time. This article explores some of the unique challenges of grieving during the holidays and offers compassionate strategies to help manage grief in ways that honor both the holiday season and the memory of lost loved ones. 

Emotional Triggers: Holiday activities, family gatherings, and traditions bring memories of loved ones who are no longer present. These traditions can feel especially poignant, as the absence of someone dear may become more apparent. Hearing certain songs, seeing specific decorations, or even smelling familiar holiday scents can evoke memories, sometimes bringing a wave of grief that feels uncontrollable. For some, it may be the first holiday season without a loved one, which makes the adjustment even more challenging. 

Social Expectations: The holiday season is filled with social gatherings and celebrations, with family members and friends often expecting those who are grieving to participate in festivities as usual. This can create a sense of guilt or inadequacy for those who don’t feel like celebrating and may lead to feelings of resentment or pressure. These social expectations can also make it hard to express grief openly, as some may worry about "ruining" the holidays for others. 

Financial and Social Stress: Holidays bring financial and logistical stress, from gift-giving to planning and travel arrangements. For those grieving, the added burden of coordinating these details can feel overwhelming, as energy may already be low and coping with everyday tasks can feel exhausting. These added pressures can intensify feelings of loneliness, loss, and emotional fatigue. 

5 Strategies for Managing Grief During the Holidays 

Coping with grief over the holidays doesn’t mean forcing yourself to ignore feelings of loss. Instead, it can involve creating space for both remembrance and healing, allowing yourself to approach this time of year in ways that prioritize mental and emotional well-being. 

1 - Set Boundaries and Be Gentle with Yourself: Grief is deeply personal, and everyone processes it differently. Recognize that it’s perfectly okay to say "no" to invitations, limit your participation, or choose not to attend events that may be too emotionally taxing. You might consider attending only portions of gatherings, setting an exit plan, or letting close friends and family know that you may step out when needed.  

2 - Create New Traditions in Memory of Loved Ones: While it may be painful to continue certain traditions, others may find solace in creating new ones that honor their loved one’s memory. For example, lighting a candle, preparing a favorite holiday dish of the deceased, or setting aside time to share memories can be meaningful. Alternatively, consider making a donation in their name, volunteering for a cause they supported, or creating a small ritual, like hanging an ornament in their honor. These new traditions can serve as a helpful way for you to both remember and celebrate their life. 

3 - Take Time for Solitude and Reflection: The holiday season is often busy, but finding quiet moments to process your grief can be invaluable. This might involve writing a letter to your loved one, reading their favorite book, or spending time in nature. Engaging in these solitary practices can offer moments of calm, giving you the chance to connect with your feelings and memories without outside pressures. Consider journaling about memories, or making a gratitude list, which can sometimes help anchor you during emotionally challenging days. 

4 - Engage with Support Networks: Grieving can feel isolating, but it’s important to remember that there are people who understand and want to help. Whether it’s close friends, family members, or a grief support group, sharing your feelings can bring comfort and remind you that you’re not alone. Sometimes, just having someone listen or acknowledge your pain can be a tremendous relief. Virtual support groups, especially during the holidays, can provide a comforting space to connect with others who are experiencing similar losses. 

5 - Prioritize Self-Care: Grief is both emotionally and physically taxing, so self-care is crucial. Activities like meditation, gentle exercise, or even just watching a favorite movie can help restore some calm. Exercises, like deep breathing or progressive muscle relaxation, can help you bring some calm in the middle of the storm. Prioritizing rest, nourishing food, and movement can support emotional processing and provide a sense of stability.  

The Importance of Professional Support 

While friends and family can offer support, sometimes professional guidance is needed to navigate the complexities of grief. Counseling can provide tools and coping strategies specifically designed to address loss and can be especially beneficial around the holidays. For those who feel isolated or find it difficult to manage emotions alone, reaching out to a counselor can be an important step.  

Looking Forward with Compassion and Resilience 

Grieving during the holidays is challenging, and each year may bring its own mix of feelings and adjustments. Healing doesn’t happen on a fixed timeline, and each holiday season may require varying amounts of challenge and effort.  Give yourself time.  Get yourself hope. 

Your Journey is Your Own 

The holidays, though often bittersweet, can still be a time of healing. There’s no right or wrong way to cope with loss during this season. By honoring your needs, embracing new traditions, and seeking support when needed, you’re giving yourself the space to grieve while moving toward healing. Above all, remember that it’s okay to adjust what the holidays have meant to you as you move forward.   

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About the Author

P. Nate O’Brien, MA, LMHC

P. Nate O’Brien, MA, LMHC, is a licensed mental health counselor, writer, and advocate for emotional well-being. With years of experience guiding individuals and families through loss, Nate combines compassion with practical strategies to support mental health during life’s most challenging moments. When not counseling, Nate enjoys writing, spending quality time with his kids, and a good cup of coffee.

Resources

• FREE Download - Emotional Skills Tracker

• Setup a FREE 20 Minute Mental Health Screening

• Learn More About Hope Haven’s Mental Health Counseling

The Emotional Scale

The Emotional Scale

Understanding emotions is a cornerstone of mental well-being, self-awareness, and emotional regulation. The Emotional Scale is a useful tool that uses a Likert scale to help individuals measure and track five core emotions—sadness, anger, worry, fear, and happiness. This tool is helpful for individual use as well as with others.

What is the Emotional Scale?

The Emotional Scale is a Likert scale tool designed to measure five key emotions by rating each on a scale from 1 to 5:

• 1 – “None” (e.g., no sadness, anger, worry, etc.)

• 3 – “In the Middle”

• 5 – “All the Way” (e.g., extreme sadness, anger, worry, etc.)

The Emotional Scale from Hope Haven’s FREE downloadable Emotional Skills Tracker.

Step-by-Step Guide to Using the Emotional Scale

For Self-Assessment

1. Set Aside Time for Reflection

   • Set aside a time that you can keep, that is consistent, and that is not burdensome (some of us are not morning people).

2. Rate Each Emotion Separately

   • Consider each emotion independently—sadness, anger, worry, fear, and happiness. 

   • Use the scale to determine the intensity of each emotion.

   • Be honest to ensure that each rating truly reflects your experience.

3. Record Consistently

   • Keep a journal or a digital record of your daily ratings. Adding brief notes about the day’s events or emotional triggers can provide context and add depth for later analysis. 

When Using the Emotional Scale with Others

1. Establish a Safe Environment

   • Begin by creating a supportive environment where everyone feels comfortable sharing their emotions without fear of judgment (especially with children). Explain that the Emotional Scale is a tool for mutual understanding, not for comparison. 

2. Explain Each Rating Clearly

• Guide each person through the scale, making sure they understand each point from 1 (no intensity) to 5 (maximum intensity).

• Ensure that participants know they don’t have to explain or justify their ratings unless they choose to.

• Once the scores have been established, you can then ask “what is playing into that number?” 

3. Allow Time for Individual Reflection

• Before sharing, let each person take a few moments to privately rate their emotions. This allows for introspection and prevents social influence on individual ratings.  Don’t be pushy.  If you do, their anxiety (worry) will increase just because of you.

4. Encourage Sharing but Respect Privacy

• In group settings, encourage sharing to the extent each person feels comfortable. Each participant can share as much or as little as they want, and it’s okay if some prefer to keep their ratings private.

• If used in a family setting, you might ask open-ended questions, like “Is there anything you’d like to share about today’s ratings?” This keeps the process gentle and non-intrusive.

Analyzing and Interpreting Ratings

Once several days of ratings have been recorded, the data can be reviewed:

For Self-Assessment and Use With Others

1.  Identify Patterns and Triggers

• Review ratings over time to identify trends. Do certain emotions consistently score high or low? Persistent high ratings in sadness or worry may suggest areas to address.

• Use notes to link emotions with specific experiences or situations. This can reveal patterns and provide insight into triggers, helping make constructive changes.

2. Reflect on Significant Changes

• Fluctuations in ratings can be revealing. For example, a significant drop in happiness may coincide with a difficult event, whereas a decrease in worry could indicate progress in managing anxiety.

• Look for improvements over time, which can reinforce positive changes or indicate areas where you’re effectively managing stressors.

Using the Emotional Scale for Personal and/or Family Settings

The Emotional Scale can serve as a catalyst for self-improvement and group bonding. Here’s how to use your findings for both individual and collective well-being:

1. Reevaluate Emotional Health Over Time

   • Periodically review and discuss emotional ratings, especially with others. Evaluate whether current support strategies are effective, and adjust your approach as needed.

   • Reflect on how the Emotional Scale has impacted understanding and connection within the group, using this insight to improve how you communicate emotions moving forward.

   • Get help if needed (such as a trusted counselor…like me).

Advantages and Limitations of the Emotional Scale

Advantages:

• Simplicity: Quick and easy to use individually or in groups (especially with family members, both adults and children).

• Enhanced Self- and Group Awareness: Promotes emotional understanding in oneself and among group members.

• Facilitates Supportive Dialogue: Helps foster conversations that build empathy and constructive group dynamics.

• Usable in Real Time: This tool can be used when we notice large emotions in ourselves or others.  A gentle inquiry (e.g., “You seem mad, where would you say anger is right not on the 1 to 5 scale?”).

Limitations:

• Subjectivity: Ratings are self-reported and can be influenced by factors like mood or interpersonal dynamics, especially in group settings.

• Limited Scope: The scale focuses on five emotions and may not capture the full emotional landscape, especially nuanced feelings.

• Privacy Concerns: In group settings, individuals might feel hesitant to share honest ratings, especially with more sensitive emotions like sadness or fear.

Final Thoughts on the Emotional Scale

The Emotional Scale is a flexible and powerful tool for promoting emotional awareness individually and in group settings (especially families). When used consistently, it can deepen self-understanding and enhance emotional bonds within families, friend groups, and support settings. The key to using the Emotional Scale effectively is honesty, compassion, and openness to growth—both as individuals and as part of a supportive community. With time, it can become a valuable part of your journey to emotional well-being, both alone and together.

About P. Nate O’Brien, MA, LMHC

P. Nate O’Brien, MA, LMHC

P. Nate O’Brien, MA, LMHC, is a licensed mental health counselor and writer passionate about helping individuals and families navigate emotional challenges with clarity and compassion. With years of experience in counseling, Nate specializes in making mental health tools accessible and practical for everyday use. When he’s not writing or counseling, you’ll find him enjoying a strong cup of coffee or advocating for more emotional awareness in schools and workplaces.

Resources

• FREE Download - Emotional Skills Tracker

• Setup a FREE 20 Minute Mental Health Screening

• Learn More About Hope Haven’s Mental Health Counseling

Hope Academy Flips the Script on Giving Tuesday

At Hope Haven, the holiday season brings warmth, togetherness, and a moment to reflect on the incredible generosity we experienced during last year’s Giving Tuesday. The support we received profoundly impacted our Hope Academy program, shaping our students’ lives throughout the year. So, this Giving Tuesday, we’re doing something a little different.

An animated GIF celebrating "Happy Giving BACK Tuesday." The design features bold, cheerful text that reads "Happy Giving BACK Tuesday" in vibrant red and light blue.

At Hope Haven, teamwork is as sweet as our watermelon treats, Career Camp students turn sugary dreams into colorful creations, one precise tray at a time.

Giving BACK Tuesday

Our students want to give back to the very people who gave to last year’s Giving Tuesday campaign. These donors made so many things possible, specifically a new student-run microenterprise. Since the launch of Hopeful Bites, something extraordinary has taken shape among our Hope Academy students. They are discovering their capabilities, building financial literacy, fostering independence, and developing essential life skills that will serve them beyond the classroom. It gives the students valuable tools and shows them there is no limit to what they can accomplish.

In a delightful burst of color and creativity, as Hope Academy students carefully line trays with vibrant peach slices ensuring each is perfectly positioned for freeze drying.

Hopeful Bites: A Success Story

The support we received for Hopeful Bites propelled our students toward greater achievements. Each Hope Academy student earned their Chez Pierre Florida Food Handlers Certification, a milestone marking the beginning of their professional journeys. Fast forward to today, and we see how much our new students are learning from the ongoing support of Hopeful Bites, gaining invaluable hands-on experience.

Four images featuring Hope Academy students proudly holding prep trays of Hopeful Bites on their way to the freeze dryer.

Tokens of Gratitude

In gratitude for the profound impact each donor made on their lives, our students spent the past few weeks planning, creating, and packaging hand-crafted treats. These tokens of appreciation offer a glimpse into the brighter future that last year’s Giving Tuesday donors helped create.

A Hope Academy student, carefully inspects each tray of Hopeful Bites before loading them into the freeze dryer.

Looking Ahead

As we look ahead, we are filled with anticipation and excitement for the possibilities the coming years will bring. With the continued support of our donors, we know together we can accomplish even more. Thank you for being a part of our Hope Haven family. We look forward to continuing this journey together, with hope and gratitude guiding the way.

Surprise! Giving BACK Tuesday Social Media Announcement Reel.

From brainstorming heartfelt gifts to crafting, packaging, and delivering them … this GivingTuesday, Hope Academy students flipped the script! This video offers a behind-the-scenes look at the hard work, creativity, and gratitude that powered Giving BACK Tuesday.

Managing Seasonal Affective Disorder: When Sunshine Ghosts Us Daily

Managing Seasonal Affective Disorder: When Sunshine Ghosts Us Daily.

1. Light Therapy: Brighten It Up

Light therapy is the most widely recommended treatment for SAD.  A light therapy box mimics natural sunlight and helps regulate your sleep-wake cycle and boost your mood. Ideally, you’d use it in the morning for about 20-30 minutes by simply sitting in front of it. 

2. Exercise for Energy: Move Like You Mean It

Exercise is probably the last thing on your mind when all you want to do is stay in your bed. But moving your body can make a big difference. The endorphins released during exercise act as a natural antidepressant, and even a short walk can help. 

If the gym feels like a no-go, consider indoor activities that don’t require getting into workout gear. A stationary bike is less expensive than you think.   

3. Eat Like You Care: Healthy (ish) Comfort Food

SAD loves to mess with cravings, and suddenly you’re reaching for carbs like they’re not going to cause you problems. But rather than diving into a bowl of mac and cheese three times a day, try to incorporate foods that support your energy and mood. Complex carbs like whole grains and lean proteins help keep your blood sugar steady. Omega-3-rich foods, such as salmon, chia seeds, and walnuts, can also help with brain health and mood regulation.  Moderation is the key here, not deprivation. Remember: eating well is about fueling your body.  Once you have a solid week’s success celebrate with shady food math (as my mom would say, if you drink a diet soda you can have the king size candy bar).

4. Take Up a New Hobby: Distract and Delight

One way to outsmart SAD is to keep your brain busy with activities that don’t let it focus on the bleak weather. Learning something new can be a fun distraction—I hear TikTok is great for that. Anything that keeps you engaged and gives you a little boost of pride and satisfaction is worth it. Plus, you might just come out of winter with a new skill to show off.

5. Socialize… Even When You’d Rather Hibernate

If SAD were a friend, it would be the one who keeps convincing you to cancel plans in favor of staying home in pajamas. But social interaction can work wonders for your mood. Even if it feels easier to hole up, try to get out with friends or connect virtually. Sometimes all it takes is a good conversation to remind you that this bleak early onset darkness will not last. 

If in-person socializing feels like a tall order, try scheduling low-stress calls with friends or family members. Find a “winter buddy” who you can text to commiserate about the weather.  A little socializing goes a long way in combating the SAD blues.

6. Stay Consistent with Sleep: Don’t Let Hibernation Take Over

Winter darkness tricks your body into thinking it’s time to hibernate like a whole bear, but keeping a consistent sleep schedule helps you avoid that urge to sleep for 12 hours straight. Try setting a bedtime that allows for 7-9 hours of sleep and be mindful of screen time right before bed.

Getting sunlight first thing in the morning (even if it’s just through your light therapy box) can help wake you up and set the tone for the day. Plus, think of this routine as your way of politely telling winter, “You may have darkness at 5 p.m., but I have boundaries.”

7. Laugh, Because Seriously… It’s All a Little Ridiculous

If you’re dealing with SAD, winter can sometimes feel like one endless grayscale loop. That’s why humor is essential—embrace the absurdity! Instead of grumbling about the snow, maybe find a way to play in it. Laugh at the fact that you’re ready for bed by 7:00 pm.

One easy way to get those endorphins flowing is to watch or listen to something that makes you laugh. Whether it’s stand-up comedy, blooper reels, or your favorite sitcom, a little laughter can shift your mood, even if it’s just temporarily.

The Takeaway: Find What Works and Give Yourself A Break

Managing SAD isn’t about pretending winter isn’t here; it’s about finding ways to make the season bearable or even enjoyable, in small ways. Try a combination of light therapy, movement, and maybe even a slightly ridiculous new hobby. You’re not expected to be a winter wonderland enthusiast, but by adding some humor and lighthearted routines you can make these darker months a little less daunting.

Remember, too, that SAD is a form of sadness, and if you find that it’s making life feel unmanageable, there’s absolutely no shame in seeking professional help.  So, as we get ready for the days ahead where daylight is a rare, fleeting event, just remember: this is temporary, the sun will return, and so will your mood.  Unless we finally move forward as a country to stop all of this time change stuff once and for all.  Until next time, make it a wonderful day. 

About the author

P. Nate O’Brien, MA, LMHC, is a writer, licensed mental health counselor, and self-proclaimed winter optimist (on a good day). With a knack for finding humor in life’s challenges, Nate shares relatable insights and practical tips to help readers navigate the ups and downs of everyday life. When he’s not writing, you can find him chasing sunlight, sipping coffee, or debating the merits of ditching daylight saving time once and for all.

Overcoming the Chasm of “Different”

When visiting a country for the first time, what would be the best attitude to have?  Should I think the absolute worst about them simply because they are different from me and what I am accustomed to?  Or should I study the new culture, suspending judgement, while I gather information about the language, customs, culture, food, etc.?  Clearly, unless we are fighting against some pretty serious internal issues, it would be the latter option.  I think we would be better served by considering differences between people as initially a wonderful opportunity to learn and have a new experience. 

Does being different make you feel awkward and distressed?

There are some people with whom we have much in common.  There are others who we consider (and most likely they us) as being so alien that we cannot fathom how they arrived at the conclusions and beliefs that they currently have.  They seem to have a much different view of the world than we do.  Our initial impulse to perhaps treat this difference as “bad” can be misleading and potentially detrimental.  If we head off in that direction, our interactions often have a greater chance of being fraught with strife, high levels of emotion, and conflict.  What if, instead of reacting, we act as an objective journalist? 

An objective journalist acts as a curious investigator.  Suspending personal opinions and beliefs, they seek out to gather as many data points as possible so that they can report the object of their fascination with anyone who might listen.  An objective journalist leaves their personal agendas behind and seeks to have the single agenda of uncovering information.  They, like a curious tourist, begin to explore the unknown. 

When you are curious and open-minded, others can’t help but follow—spread it around.

In today’s divisive culture, we can find ourselves on the opposite side of a whole host of spectrums.  Our initial impulse is to stay within the confines of our echo chambers, constantly exposing ourselves to those with whom we most agree.  Such exposure can lead to a feeling of self-righteousness, a false belief that you have the other side “figured out,” and then a slew of beliefs about the other side that might or might not even be true.  A fierce tribalism forms and the character assassinations begin.  Little true exploration of the “other side” is even attempted. 

Instead, I propose we fight that impulse and seek out people who are very different than we are (e.g., culturally different, politically different, or even religiously different) and begin a conversation.  Here are some helpful tips on how you can take such a journey.

Embrace what makes you unique; it’s your greatest strength.

• Identify someone without whom you do not agree or who is very different than you are in some way.  This individual can be a family member, friend, or even a stranger.  For example, one might speak to a person of another faith.   

It’s our differences that make us invaluable to each other.

• Ask them to meet with you.  I have found that most people love to talk and eat, especially if you are paying for it!  This way, you are introduced to a new cuisine as well. 

•  Ask more questions than you answer.  Ask every question you can think of that might help you best understand their point of view.  Use those famous questions you learned in school who, what, when, where, why, how. 

What makes you different is what makes you unforgettable.

Let’s use a different example, politics.  Let’s pretend you are completely confused by a member of a particular party.  You simply can’t understand why they believe what they believe. 

Here are some sample questions to get you started (you can substitute any you choose – just remember, you are trying to get the information from them you would want to give them if they were asking you the same questions:

1. Who – who did you learn this belief from?

2. What – what do you like best about this political party?

3. When – when did you start believing this for yourself?

4. Where – where do you think this party will take people if they were to have their way?

5. Why – why do you like this party over the others?

6. How – how do you think these parties are similar and different?

Diversity of thought fuels progress and possibility.

• Listen well.  Try your best not to interrupt.  Ask open-ended questions.  Ask for clarification if you are having a hard time understanding.  Take notes (with their permission of course).  Read it back to make sure you have it right (“Is that what you are saying?

• Don’t argue.  Remember, this is not a debate.  This is an investigation.  Your goal is to understand what they believe and why they believe it. 

Different does not always (or even often) mean bad.  People who seem different than you most likely arrived at these differences the same way you did.  Before I seek to even debate someone, it would be wise to truly seek to understand them.  Becoming a worldview tourist can help decrease angst even in a debate as you have spent the time to get to know the other side.  You might be surprised to find that you have much in common with those who seem very different than you.  You can bridge the seemingly unjumpable chasm between “them” and you.

Difference is where true connection and understanding can start.

What to Consider When Looking for Counselor

What to Consider When Looking for Counselor.

Hello from Hope Haven.  Looking for a mental health counselor can be a scary proposition for some, especially if they have never been to one before.  The thought of just beginning the process can be overwhelming.  I wanted to make that process a little easier by offering you six things to consider when looking for a counselor and four things you should not consider. 

What to Consider:

1)  Do they know what they are doing?

Make sure to research the counselor or therapist.  If you are looking for a mental health counselor, for example, consider if they have the appropriate training.  You can typically determine that by identifying whether they are licensed by the state that you live in.  This licensure requires them to have acquired the prerequisite degrees necessary.  Most of them can’t wait to show them off.  Mine are on my wall because of what I paid for them.  Check if their treatments are evidence-based (i.e., Per APA.org, look for treatments that are scientifically demonstrated to be effective with depression, anxiety, panic attacks, angry children, etc.). 

 2)  Do they have experience with your specific concern?

Check to see if they have had experience treating concerns like yours.   Upon your investigation, you can usually find out which theoretical orientations or modalities they use (e.g., CBT, DBT, TF-CBT, EMDR, etc.) as well.  For fun, ask them about a made up one (like QVC) and see how they handle it.

 3)  How much will the services be?

Payment can be made out-of-pocket or through insurance.  It is important to understand which (or both) this provider will accept.  Make sure to ask about the average number of sessions (typical length of treatment) and about any possible costs associated with missed sessions.  If you have chickens, you might be able to trade some eggs.  Those things are like gold right now.

Hope Haven | Mental Health Counseling

4) Where are they?

Providers are no longer constrained to their physical location.  While their location is important if you want in-person sessions, exploring whether they have an internet option can be helpful and offer greater flexibility (e.g., via Zoom).  Just don’t conduct your virtual session while moving around a lot.  We get dizzy.

 5) What are they like?

At times, a provider will have a reputation or even customer ratings.  Check with your other health-care providers, friends, and family to see if they might refer you to a trusted source.  It is good to check on if they are genuine, personable, and comfortable. 

 6)  When can I see them?

It is rare if providers do not have a waitlist.  Finding a good provider who can see you quickly is like finding a 20.00 bill in your pocket you forgot was there. 

Hope Haven | Mental Health Counseling

 What NOT to Consider:

1) How they look

People are like books.  Don’t judge them by their cover. 

2) What kind of car they drive.

Despite popular rumors, a good clinician does not have to own a Prius or a Subaru.

 3) Whether they are gluten-full or gluten-free.

The gut wants what the gut wants.  Diet does not usually play a huge role in how good a counselor might be.

 4) Their Youtube channel or blog…

They are doing the best they can.

Hope Haven | Mental Health Counseling

In all, make sure to take your time.  Unless it is an emergency you do not have to rush.  Be pleasantly persistent.  Keep following up with the questions you have.  Interview them to see if they are a good fit.  Try giving them about 3-5 sessions before making a final decision.  I hope that helps.  Make it a wonderful day.

P. Nate O’Brien MA, LMHC

Empowering Jacksonville Families

Courtesy of the Buzz Daily News Network, this interview features Hope Haven CEO Stella Johnson and "On a Mission" host Jack Sears.

Our CEO Stella Johnson Discusses Hope Haven’s 100-Year Legacy on, “On a Mission”

We’re excited to share that our CEO, Stella Johnson, recently joined Jack Sears on the Daily News Network’s “On a Mission.” During the interview, Stella dove into some of what we’re doing at Hope Haven to help families and kids in Jacksonville thrive.

As one of Jacksonville’s biggest and oldest nonprofits, Hope Haven offers a wide range of programs and services aimed at helping children reach their full potential. Stella talked about the range of support we provide—from clinical care and early diagnostics for toddlers to after-school programs, tutoring, and summer camps. It’s all happening at our Beach Boulevard campus, and it’s all about supporting kids in the best way possible.

Hope Haven's Year-Round Discovery School | For Children Ages 3-5

Each year, we’re proud to serve about 3,500 families, offering things like autism evaluations, in-depth interventions, and family advocacy. One of our key goals? Making sure cost isn’t an obstacle for families who need help. “We offer financial assistance for families who might be struggling to afford our services,” Stella said, showing how committed we are to equity and accessibility.

Stella also revealed a bit about her own journey. She’s been leading Hope Haven for seven years now, and her dedication to ensuring that every family gets the resources they need speaks volumes about her commitment to Hope Haven’s mission. Sharing during her interview, “It’s a privilege to be able to help other families get the support they need to thrive and become healthy, productive members of society.”

Hope Haven's Summer Reading Academic Camp

Financial support has become more important than ever, especially with rising costs making things tougher for many families. Hope Haven has provided over $800,000 in assistance this year alone, helping to ensure that families can access the care they need. Stella emphasized how critical community support is to keep these services running and to continue helping families during tough times.

Looking ahead, Stella gave a sneak peek into an exciting milestone—Hope Haven’s 100th anniversary in 2026. “It’s incredible to think about how far we’ve come from the old Hope Haven Hospital,” she said. “But one thing that’s stayed the same is our commitment to helping children reach their full potential.”

Hope Haven's Career Camp | Winter, Spring & Summer | For Ages 14-21 with an IEP or 504 Plan

Beyond the core programs and services discussed in the interview, there’s so much more happening at Hope Haven that we’re excited to share with you! One of our standout areas is our Employment and Transition Services, where we help young adults and teens prepare for the workforce and independence. Through programs like Hope Academy, Pre-Placement Training, Self-Advocacy Coaching, On-the-Job Training (OJT), and Work-Based Learning Experiences (WBLE) we are equipping our students for real-world success. Whether it’s building job skills, boosting confidence, or creating new opportunities, we’re here to support them every step of the way.

If you or someone you know could benefit from our services, we’d love to hear from you! Feel free to give us a call at (904) 346-5100 or visit our website at www.hope-haven.org. Whether you’re interested in scheduling a tour of our Discovery School, setting up a mental health assessment, or learning more about getting involved, we’re here to help.

A huge thank you to Jack Sears and the Daily News Network for highlighting the work we do. Together, we’re helping families and children thrive!

Hope Haven's Camp Hope | Winter, Spring & Summer | For Ages 3-22

But wait! That’s not all!

Are you curious to learn more about Hope Haven?

Here’s an excellent resource guide to the full range of our programs and services.   

• After-School Programs

• Camps

• Center for Educational Advocacy

• Children First Co-Parenting Class

• Clinical Services

• Discovery School

• Employment and Transition Services

• Educational Development Services (Tutoring)

• Hope Academy

• Social Skills Groups

How to Advocate for Your Child Like a Pro

How to Advocate for Your Child Like a Pro

Is Your Child Struggling To Stay on Track in School?

Being a parent is tough enough, and when school gets hard for your child, it can feel overwhelming. If you're a parent in Jacksonville, FL, and feel like your child could use more support at school, you’re not alone. Lots of parents feel this way—you're doing your best to juggle work, home and helping your child succeed. The good news is that you can take small steps that make a big difference.

Trust Your Instincts

You don’t need to wait for a diagnosis to act. If something feels off—your child is trying their best but schoolwork is still a struggle—trust yourself. You know your child better than anyone, and if school feels harder than it should, your gut is probably right. It’s okay to start looking for answers now.

3 Things to Keep in Mind:

1. You are your child’s best advocate: No one else knows them like you do.

2. You don’t have to know everything: Start where you are, and learn as you go.

3. You’re not alone: There’s help out there.

Taking Small Steps Forward

I know it can feel like too much. But you don’t have to do everything at once. As the old saying goes, "How do you eat an elephant? One bite at a time." The same applies to advocating for your child—one small step at a time makes things feel manageable.

Hope Haven | Center for Educational Advocacy | www.hope-haven.org

10 steps to get started

1. Start with What You Know

   You know your child better than anyone. Start by noticing the areas where they struggle—maybe it’s reading, math, or even staying focused. Write down what you’ve observed so you can share it with their teacher. Your notes can help the school understand what’s going on and what your child needs.

2. Know Your Rights and Educate Yourself

   It’s okay if you don’t know all the rules—most parents don’t. But it’s important to know that if your child has a disability, they have rights under Free Appropriate Public Education (FAPE), which includes necessary accommodations and services under IDEA. This can include things like special education services or accommodations. You have the right to ask for an evaluation if you think your child needs more support.

3. Stay Involved  

   It helps to be as involved as you can. Check in with teachers and stay in the loop about how your child is doing. You don’t have to attend every school event, but having regular communication with the school can make a big difference. Keeping track of their progress, challenges, and conversations will help if you need to ask for more support.

4. Stay Informed

   Knowing a bit about the laws that protect your child’s rights can be empowering. There are online resources like the Office of Civil Rights (OCR) and Understood.org that can guide you through the process. Don’t be afraid to ask the school for help.

5. Be Organized

   It’s super helpful to keep everything in one place. Put your child’s report cards, Individualized Education Plans (IEPs), assessments, and emails with teachers in a folder or binder. This way, when you need to look something up or talk to the school everything is right at your fingertips.

6. Ask Questions

   Never be afraid to ask questions. If something isn’t clear, ask for it to be explained in simpler terms. You can say, “Can you tell me more about that?” or “I just want to make sure I understand—did you mean...?” It’s okay to ask as many questions as you need. After all, you want to be clear on everything so you can support your child.

7. Build Relationships

   Getting to know your child’s teachers and school staff can make things easier. Attend parent-teacher conferences, send friendly emails, or even just say hello at school events. The better your relationship with the school, the easier it will be to work together for your child’s success.

8. Stay Positive

   This one’s big. It’s easy to feel frustrated when things aren’t going well, but staying positive helps everyone involved. Focus on finding solutions and remember that the school is there to help too. When you stay calm and solution-focused, it’s easier to have productive conversations.

9. Use Your Resources

   There are so many resources out there to help you. Bookmark useful websites, join parent support groups or ask your school for recommendations. Building your support network makes the whole process feel less overwhelming.

10. You’re Not Alone

    This is the most important thing: you don’t have to do this alone. There are so many people and resources out there ready to help you and your child succeed. Don’t hesitate to ask for help when you need it.

Hope Haven | Center for Educational Advocacy | www.hope-haven.org

Your Journey with Hope Haven

At Hope Haven, we get it. We know how tough it can be to make sure your child is getting the right support at school. That’s why our Educational Advocacy Team is here to walk with you through every step. Whether you need help getting organized, communicating with the school, or understanding your child’s rights, we’ve got your back.

• Let’s Get Organized: We’ll help you organize your notes, documents, and everything you need so you’re always prepared.

• Prepare for Success: We’ll make sure you’re clear on your goals and help you advocate for your child with confidence.

• Communicate Clearly: We’ll help you talk to the school in a way that makes sure your child’s needs are understood and met.

Your Child’s Success is Our Mission

At Hope Haven, we believe every child deserves the right to reach their full potential. With our Education Advocates by your side, you don’t have to navigate this alone. We’re here to support you every step of the way and make sure your child gets what they need to thrive.

Ready to advocate for your child like a pro? 

Schedule your free consultation today and let Hope Haven’s Advocacy Team help you make a difference for your child!

Helpful Resources:

• Office for Civil Rights (OCR)

• Wrightslaw Special Education Resources

• Understood.org

• Individuals with Disabilities Education Act (IDEA)

• Florida Disabilities Resource Hub

• Agency for Persons with Disabilities (APD)

• A Parent’s Introduction to Exceptional Student Education in Florida

• Policy Statement on Inclusion of Children with Disabilities in Early Childhood Programs

Empowering Parents

Hope Haven | Center for Educational Advocacy | Empowering Parents | IEPs & 504 Plans Resource Guide 

A Simplified Guide to IEPs & 504 Plans in Florida

Understanding the school system can be tough, especially if your child has special learning needs. As parents, you want your child to do well in school. But figuring out Individualized Education Programs (IEPs) and 504 Plans can be confusing.

At Hope Haven, we believe every child should get the best education for their needs. That’s why we made this easy guide to help you understand IEPs and 504 Plans. We want to give you the knowledge and tools to support your child’s education.

Whether you’re new to this or looking to improve your child’s support, we’re here to help. Let’s see how these plans can make a big difference in your child’s school experience.

Table of Contents

• Helpful Best Practice Tips

• How Our Center for Educational Advocacy Can Help

• Additional Questions, Answers & Resources

• What are IEPs & 504 Plans?

• What are the Similarities & Differences?

• What Factors Affect IEP & 504 Plan Evaluations?

• How Do I Get Started?

Hope Haven | Center for Educational Advocacy | Empowering Parents | IEPs & 504 Plans Resource Guide 

What Are IEPs & 504 Plans?

IEP:

Purpose: Helps students with disabilities succeed in school.

Key Components:

• Personalized Goals

  IEPs have specific, measurable goals tailored to the student’s unique needs (1).

• Special Education Services

  IEPs include specialized instruction and related services like speech therapy, occupational therapy, and counseling (1).

  .

• Progress Tracking

  IEPs require regular progress reports and updates on your student's goals. (5).

• Example

  Think of an IEP like a custom-tailored suit, designed to fit the unique needs of your child.

  For instance, if your child struggles with reading, the IEP might include daily one-on-one reading sessions with a specialist (1).

504 Plan:

Purpose: Ensures students with disabilities have equal access to education.

Key Components:

• Accommodations

  Adjustments like extra time on tests, modified seating, or the use of technology aids (1)

• Accessibility

  Ensures the learning environment is accessible, such as providing a ramp for a student in a wheelchair (2).

• Progress Tracking

  Unlike IEPs, 504 plans do not require regular progress checks or detailed reports (1).

• Example

  A 504 Plan is like adding ramps and elevators to a building, making it accessible to everyone. For example, a student with ADHD might receive extended time on exams and the ability to take breaks during class (1).

Hope Haven | Center for Educational Advocacy | Empowering Parents | IEPs & 504 Plans Resource Guide 

What are the Similarities & Differences?

Similarities:

• Both cover accommodations and accessibility (8).

• Both involve a team of educators and parents.

• Both require regular reviews and updates (3).

• Both are legally binding (4).

Differences:

• IEP: More comprehensive and includes special education services (4).

• 504 Plan: Focuses specifically on accommodations within the general education setting and is less intensive (3).

Who Benefits Most?

• IEP: Best for students needing specialized instruction and services. For example, a student with autism who speech therapy and social skills training (1).

• 504 Plan: Ideal for students who need accommodations but can stay in regular classes. For instance, a student with diabetes who needs to take breaks to check their blood sugar (8).

Can a Student Have Both?

Yes, some students might need both an IEP and a 504 Plan to fully support their needs. For example, a student with a learning disability might have an IEP for specialized instruction and a 504 Plan for classroom accommodations (1).

Hope Haven | Center for Educational Advocacy | Empowering Parents | IEPs & 504 Plans Resource Guide 

what Factors Affect IEP & 504 Plan Evaluations:

Increasing Support:

• Keep Good Records: Save all important documents about your child’s needs and progress, like medical records, teacher notes, and past tests.

• Regular Check-Ups: Have frequent evaluations to update the IEP or 504 Plan. This can include academic tests, behavior assessments, and therapy evaluations.

• Work Together: Parents and teachers should work as a team to support the student. Attend meetings, share your thoughts, and follow through on plans.

Decreasing Support:

• Incomplete Records: Not having all the necessary documents can lead to less support.

• Few Check-Ups: Without regular updates, the IEP or 504 Plan might not match the student’s current needs.

• Less Involvement: If parents are not actively involved, the support might not be as effective.

Importance of Parental Involvement:

• Stay Involved: Go to all meetings and talk regularly with teachers. This shows your child that their education is important.

• Track Progress: Use tools like a progress tracker or journal to keep an eye on your child’s achievements and areas needing improvement.

• Be Proactive: Speak up for your child’s needs and make sure they get the support they deserve. Don’t hesitate to ask questions or request more resources.

Hope Haven | Center for Educational Advocacy | Empowering Parents | IEPs & 504 Plans Resource Guide 

How Do I Get Started?

IEPs (Individualized Education Programs):

1. Getting Started:

   To get an IEP, your child needs to be evaluated to see if they qualify for special education. This evaluation includes tests and observations to understand your child’s needs (9).

2. Creating the IEP:

   A team, including you, teachers, and specialists, will work together to create a plan. The IEP will have specific goals and services to help your child succeed in school (9).

3. Checking Progress:

   The IEP is reviewed every year to see how your child is doing and to make changes if needed. You can ask for a meeting anytime if you have concerns about your child’s progress (9).

Where to Find Help:

The Florida Department of Education has lots of resources to help you understand IEPs. The Bureau of Exceptional Education and Student Services (BEESS) (10).

504 Plans:

1. Getting Started:

• A 504 Plan is for students who have a disability that affects their daily activities. The school will gather information from you, teachers, and doctors to see if your child qualifies (11).

2. Creating the 504 Plan:

• A team, including you and school staff, will create a plan to provide the necessary accommodations. The plan will focus on removing barriers so your child can access education like other students (11).

3. Checking Progress:

• The 504 Plan is reviewed regularly to make sure it still meets your child’s needs. Changes can be made based on how your child is doing (11).

Where to Find Help:

The Florida Department of Education has a guide to help you understand 504 Plans. BEESS also offers support and information for parents and schools (10).

Hope Haven | Center for Educational Advocacy | Empowering Parents | IEPs & 504 Plans Resource Guide 

Helpful Best Practice Tips

Tips for Communicating with Teachers

• Regular Check-Ins: Schedule regular meetings or calls with your child’s teachers to discuss progress and any concerns.

• Be Clear and Concise: Clearly communicate your child’s needs and any changes you notice.

• Stay Positive: Approach conversations with a positive attitude and a collaborative mindset.

Tips for Tracking Progress

• Use a Journal: Keep a daily or weekly journal of your child’s progress and any challenges they face.

• Set Goals: Work with your child to set achievable goals and celebrate their successes.

• Review Reports: Regularly review progress reports and assessments from the school.

• Use Apps: Consider using apps like ClassDojo, Seesaw, or Khan Academy to track your child’s progress and stay connected with their teachers.

Tips for Being Proactive

• Educate Yourself: Learn about your child’s rights and the resources available to them.

• Stay Organized: Keep all documents, reports, and communications in one place.

• Seek Support: Don’t hesitate to reach out to advocacy groups or professionals for help.

Hope Haven's Center for Educational Advocacy

How our Center for Educational Advocacy Can Help

• Guidance: At Hope Haven our Education Advocates will help you understand the IEP and 504 Plan processes, breaking down complex information into manageable pieces. For example, we can explain the legal rights your child has under these plans.

• Support: Our Education Advocates assists in meetings and evaluations, ensuring your child’s needs are met. We can attend school meetings with you to provide support and advocacy.

• Resources: We provide tools and resources to help you advocate for your child, including workshops and one-on-one consultations. For instance, we offer training sessions on how to effectively communicate with school staff.

• Examples: If your child is struggling with reading, our Education Advocates can help you understand what specific interventions might be included in an IEP, such as one-on-one tutoring or specialized reading programs.

Additional Questions, Answers & Resources

Does an IEP and/or 504 Plan Assist with Transportation to and from School?

Both IEPs and 504 Plans can include transportation accommodations if necessary for the student to access their education (7).

What to Do If Your Child Is Not Getting the Support Set Down in an IEP and/or 504 Plan?

• Step 1: Speak to your child’s teacher and support staff directly to ensure all parts of the IEP or 504 Plan are being followed.

• Step 2: Request a formal meeting to review the plan if issues persist.

• Step 3: If the problem continues, escalate the issue to the school principal or special education coordinator.

• Step 4: If necessary, seek assistance from an educational advocate or legal professional.

References

1. Understanding IEPs and 504 Plans: A Guide for Parents

2. What You Need to Know

3. Similarities Between IEPs and 504 Plans

4. How IEPs Help Students

5. Measuring and Reporting Student Progress

6. What is an IEP?  

7. Transportation in IEPs and 504 Plans  

8. IEP vs 504 Plan: Choosing the Best Special Education Plan for a Student With Disabilities

9. Individual Educational Plans (IEPs) and Educational Plans (EPs) for Transferring Exceptional Students

10. BEESS Resource & Information Center

11. A Parent and Teacher Guide to Section 504

Helpful Resources

• Individuals with Disabilities Education Act (IDEA)

• Every Student Succeeds Act (ESSA)

• Florida Disabilities Resource Hub

• Agency for Persons with Disabilities (APD)

• Office of Civil Rights (OCR)

• Family Empowerment Scholarship

• Florida Exceptional Student Education

• A Parent’s Introduction to Exceptional Student Education in Florida

• Florida Dept. of Education - Selecting Accommodations

• Florida Dept. of Education - District Implementation Guide for Section 504

Related Blog Posts

• Back-To-School Tips

• Early Childhood ASD Assessments

• New Realities After ASD Diagnosis

• Empowering Student: The Role and Importance of Educational Advocacy

Empowering Students

The Role and Importance of Educational Advocacy

Educational advocacy is all about ensuring that every child gets the support they need to succeed in school. It involves standing up for students’ rights and helping them access the services and resources they need.

But what does that really mean?

What is Educational Advocacy?

Educational advocacy means working on behalf of students to ensure they receive appropriate support and resources. This can involve advocating for special education services, such as individualized education programs (IEPs), or additional support like tutoring or classroom accommodations (Smith, 2023).

Why is It Important?

Without advocacy, many students might not get the help they need. For example, a student with dyslexia might struggle to read without extra support. An advocate can help ensure that the student gets access to specialized reading programs and accommodations like extra time on tests (Doe, 2022).

How can you help?

If your child has special needs, navigating the school system can be overwhelming. It is easy to feel unsure and to wonder if your child is receiving the support they deserve. Educational advocacy can change that—ensuring your child’s unique needs are properly addressed in the classroom (Brown, 2021).

Every parent wants their child to succeed in school. For parents of children with special needs, this path is filled with challenges. Maybe your child isn’t receiving the right accommodations, or their Individualized Education Plan (IEP) isn’t being followed. The frustration can leave you feeling unheard.

At Hope Haven, our Education Advocates are here to help you navigate the complexities of the school system. Our advocates will work alongside you to ensure your child’s educational needs are met. We are here to empower you, giving you the knowledge and support you need to advocate effectively for your child.

Every child deserves a chance to reach their full potential.

3 Tools to Assist You:

1. Know Your Rights: Our advocates will help you understand the federal laws protecting your child’s right to a free and appropriate public education (FAPE) (Green, 2020).

2. Develop a Strong IEP or 504 Plan: Hope Haven’s Education Advocates will guide you through the process of obtaining and enforcing a comprehensive IEP or 504 Plan (Green, 2020).

3. Collaborate with Schools: We’ll assist you in building positive relationships with educators and administrators to ensure that your child’s needs are being met (White, 2019).

By partnering with Hope Haven, you’ll have a strong advocate in your corner. Our team will help you ensure your child receives the accommodations and services they need to succeed in school and beyond.

Are you ready to empower yourself and your child through educational advocacy? Learn more about Hope Haven’s Center for Educational Advocacy and how our Education Advocates can support your family. Click HERE to get started.

References

1. Smith, J. (2023). Understanding Educational Advocacy. Education Today. Retrieved from Education Today.

2. Doe, A. (2022). The Importance of Advocacy for Special Needs Students. Journal of Special Education Advocacy, 45(3), 123-134. Retrieved from Journal of Special Education Advocacy.

3. Brown, L. (2021). Federal Laws Protecting Students’ Rights. Advocacy in Education. Retrieved from Advocacy in Education.

4. Green, M. (2020). Developing Strong IEPs and 504 Plans. Special Education Resources. Retrieved from Special Education Resources.

5. White, R. (2019). Building Positive Relationships with Schools. Parenting Special Needs Magazine. Retrieved from Parenting Special Needs Magazine.

Helpful Resources

• Individuals with Disabilities Education Act (IDEA)

• Every Student Succeeds Act (ESSA)

• Florida Disabilities Resource Hub

• Agency for Persons with Disabilities (APD)

Related Blog Posts

• Back-To-School Tips

• Early Childhood ASD Assessments

• New Realities After ASD Diagnosis

April is Autism Awareness Month

April is Autism Awareness Month, a time to celebrate the unique abilities and strengths of individuals on the autism spectrum. Neurodiversity refers to the variations in neurocognitive functioning across individuals. Neurodiversity is essential for a fully functioning society. Individuals on the autism spectrum make a highly valuable contribution to this diversity. Unfortunately, many people with autism face barriers to acceptance and understanding in their communities. It’s important for us all to recognize the value of neurodiversity and to support and accept individuals on the autism spectrum.

Autism is a neurodevelopmental disorder that affects social communication and behavior. Based on the most recent CDC report released this month around 1 in 36 children in the United States have been identified with autism spectrum disorder (ASD; Source: https://www.cdc.gov/media/releases/2023/p0323-autism.html). While autism can present challenges, individuals with autism also have unique talents and strengths that can enrich our communities. Many people on the autism spectrum have exceptional memory, attention to detail, ability to reliably complete complex and repetitive tasks, and problem-solving skills. They may also have a great deal of curiosity about a particular subject, develop highly detailed knowledge of that subject, which can lead to great achievements and innovations. One such example is the “hug box” Dr. Temple Grandin developed.

Dr. Grandin is a well-known advocate for individuals on the autism spectrum and writes about her own experiences with this diagnosis in her book, “Thinking in Pictures,” first published in 1995. She is also an animal behavior expert who developed the “hug box” or “squeeze machine” that provides deep pressure stimulation to livestock to alleviate anxiety during their handling and transport. No doubt she derived inspiration for this device in part based on her own understanding of discomfort during transitions and the experience of sensory overwhelm. Deep pressure is a known method to soothe many individuals with autism spectrum disorder.

Despite the strengths of individuals on the autism spectrum, they often face discrimination and social exclusion. Many people with autism struggle to communicate and interact with others in ways that are expected in social situations. They may also experience sensory sensitivities that can make certain environments or experiences overwhelming. As a result, they may struggle to make friends, find it difficult to attain or maintain employment, and may face bullying or harassment.

As members of our communities, we can recognize and value the diversity of how each individual thinks and processes the world. This means conveying acceptance in our day to day lives, whether at work, at the grocery store, or when interacting with others in the neighborhood. Here are some ways we can support and accept individuals on the autism spectrum:

1.       Educate ourselves: Learn about autism and the experiences of individuals on the autism spectrum. This can help us better understand their challenges and strengths.

2.       Listen and communicate: Individuals with autism may struggle with verbal communication or understanding social cues. It’s important to be patient, listen carefully, clarify when necessary, and communicate clearly.

3.       Create and celebrate inclusive environments: Provide or be aware of accommodations and modifications that allow individuals with autism to participate fully in our communities. This can include sensory-friendly spaces, visual aids, or modified communication methods.

4.       Celebrate differences: Recognize that individuals with autism have unique talents and perspectives. Celebrate their strengths and contributions to our communities.

5.       Advocate for inclusion and acceptance: Speak up for the rights and inclusion of individuals with autism in our communities. Challenge discrimination and promote understanding and acceptance.

6.       Develop a curious and nonjudgmental stance. Have you ever noticed a child crying uncontrollably at the grocery store, restaurant or neighborhood park? Remain patient and curious. Smile at a struggling parent and make brief eye contact in a way that conveys, “We are together in this, and I accept you.”

Autism Awareness Month is a time to celebrate the value of neurodiversity and promote acceptance and inclusion for individuals on the autism spectrum. By recognizing and celebrating the unique talents and strengths of individuals with autism, and creating inclusive environments that allow them to thrive, we can build more diverse and vibrant communities for us all to enjoy.

For more information please visit:

Centers for Disease Control and Prevention. (2021). Autism spectrum disorder (ASD). https://www.cdc.gov/ncbddd/autism/facts.html

National Institute of Mental Health. (2019). Autism spectrum disorder. https://www.nimh.nih.gov/health/topics/autism-spectrum-disorders-asd/index.shtml

Mental Health Tips for Post-Holiday Stress

By Brooke Bien-Coatney, LCSW, Clinical Services Therapist at Hope Haven

The holidays are full of celebrations, gifts, and get-togethers with family, friends, and loved ones. The holidays also allow for time away from work and other responsibilities. Many people enjoy this time and look forward to it, while others feel overwhelmed with the demands and expectations placed on them. Many people cherish the time they have with loved ones, while others grieve for those who are no longer with them. Because of this, the changes felt following the holidays, as we adjust back to our day-to-day responsibilities, can be jarring and stressful.

It is important to take care of your mental health to combat this stress, and ease into the new year. Here are some tips for post-holiday stress management:

• Get back into your routine – It can be fun to break up the monotony of life by being spontaneous, going on trips, and trying new things, but life can quickly feel chaotic and stressful even when we are having fun. Routines help us feel stable, less stressed, and improve sleep. Work on putting together a consistent routine for the new year. This routine might include going to bed and waking up at the same time, eating dinner at the same time every night, and/or exercising on a regular schedule. The more consistency you can weave into your routine, the better.

• Take a break from social media/technology – Many of us use social media or technology to stay connected to others, to network, and to share our life experiences. Social media and technology are a huge part of our day-to-day lives, but viewing others’ joyful moments, achievements and perfected selfies can sometimes lead to feelings of inadequacy, loneliness, low mood, and anxiety. Give yourself a break and focus on what is around you, who you are with, and what you are grateful for.

• Intentionally take care of yourself (self-care) – The definition of self-care is “the practice of taking an active role in protecting one’s own well-being and happiness, in particular during periods of stress.” Self-care is intentional, so you must make an effort to make it happen. Some self-care strategies include treating yourself with a gift, reading that book you have been meaning to read, getting a massage, watching the sunrise, or scheduling some “you time” even if for just 30 minutes a day where you do something that brings you joy. This time is for you and no one else. Also, learning to set boundaries and say “no” is essential to your self-care. If you are feeling overwhelmed, practice saying “no” in a way that feels comfortable for you, and then do it.

• Try something new – With the new year being a fresh start, it is the perfect time to try something new. Trying something new can be refreshing and open new opportunities and learning experiences, which can lead to improved mood and excitement in your life.

• Plan your next vacation or stay-cation – Who doesn’t like a vacation? When you plan your next vacation or adventure, it gives you something to look forward to, new memories to come, and instills hope for the future. This can be helpful if you are feeling stuck in the monotonous day-to-day during the “cold” winter months.

• Get better sleep – When we are not getting good sleep, we often feel more irritable, worried, angry, and down. Sleep hygiene is essential to our health and well-being. Try to get to bed at the same time every night and get at least 7 to 8 hours of sleep per night. Put away those phones and tablets and turn off the TV at least an hour before bedtime. If you find your mind racing at bedtime or any time, look into the various resources out there on mindfulness and relaxation techniques. Taking an active role in your sleep hygiene can help reduce stress significantly.

• Ask for help – The stress that comes with returning to work or other life responsibilities after the holidays may be too much for some people. If you find easing into the new year too overwhelming and difficult to manage on your own, it is okay to ask for help. Talk to your loved ones or trusted friends and if you find you need additional support, do not hesitate to reach out to a professional. There are caring people out there who are willing to listen and provide support.

If you feel you need help dealing with stress, you’re welcome to schedule a brief mental health services screening with us online. During your screening appointment, a member of our clinical team will talk with you about your specific concerns and a plan for moving forward, whether that is with us or with another provider. Call us at 904.346.5100.

If you are experiencing thoughts of hurting yourself or someone else, please immediately contact the National Suicide Prevention Lifeline at 988.

What is dyslexia?

October is Dyslexia Awareness Month. Dyslexia is a greatly misunderstood topic.

MYTHS:

1. It is where one SEES letters reversed; therefore color overlays help.

2. A child with dyslexia will never learn to read if not reading by third grade.

Why would you give up on a 9 year old child?

Belief in these myths can cost a family greatly if the wrong intervention is utilized. Because the brain has plasticity, any dyslexic can learn to read, no matter the age.

To understand more, watch this video by neuroscientist Gueneviere Eden. She presents neuroscience in a way everyone can understand.

For more on Hope Haven’s Educational Development Services (Tutoring), our facilities, educators and staff, or to arrange a tour, contact us at 904-346-5100.

Back-to-school tips

BACK-TO-SCHOOL TIPS

A new school year will be here before you know it. And if your child is about to start in a new grade or classroom—or a whole new school—summer is your best time to lay the groundwork for a productive year.

While that applies to all school-age kids, it’s especially true if the child has special needs. And doubly so after two years of COVID-19-related disruptions.

While you’re squeezing as much enjoyment as possible from summertime, it makes sense to spend some part of the steamy weeks ahead focusing on the academic rigors of fall and beyond. These tips can help prepare your child for a smooth transition to a new school year.

• Get organized. Education is all about information, and you know you’ll be receiving a lot of it. Including meeting invitations, reminders, progress reports and other important paperwork. Also notes from phone conversations and other interactions. It helps if you can get a jump on that firehose of information. Set up a system that helps you keep track of it all, all in one place. Organize it according to your own priorities since you’re the one who’ll be consulting it. Managing your child’s education is easier if you know where to turn for all the info you’ll need.

• Review your child’s IEP. Over time, Individualized Education Plans (IEP) expire. They get stale. They may not account for the child’s most recent milestones and achievements. Revisit your child’s plan now and arm yourself with a list of what needs to change. Don’t hesitate to request an IEP review meeting if you feel one is needed. Even if no updates are required, be sure you know the expiration date.

• Build excitement, not fear. Your child will likely have some reservations about the coming school year—especially if it involves transitioning to a new school. Encourage your child to talk about the classes and activities they’re most—and least—excited about. Focus on ways they’ll benefit from learning new skills and having new friends.

• Build a new routine. Develop a new schooltime routine for the coming year. If you can do that with input and buy-in from your child, they’ll have good reasons to stick with it. Perhaps start with mornings and evenings. Practice wake-up, hygiene, mealtime and ready-for-school routines during the summer and tweak as necessary. By the time school starts, it’ll all feel familiar

• Stay informed. To be a better advocate for your child, it’s important to know the dynamics. Learn about pending legislation and other developments that determine how special education is conducted in your area. That includes at the state and local levels. You’ll be less likely to feel blindsided if something changes.

• Make logistics more familiar. Is there a new way your child will get to and from school? A new place where they’ll be having lunch? Summer is a great time to introduce those activities. By the time school starts your child will have a better handle on what to expect.

• Visit new teacher(s) and classroom(s). If your child will be exposed to new people and new environments this year, they may feel more comfortable if you can arrange a visit in advance. Show them around. Letting the child take in the newness helps remove the sting of uncertainty—at a time when there’s less pressure. Early visiting can also help educators get more familiar with your child.

For more on Hope Haven’s Discovery School, our facilities, educators, and staff, or to arrange a tour, contact us at 904-346-5100.

New realities after ASD diagnosis–Part 1

New realities after ASD diagnosis–Part 1

It’s among the scariest sentences any parent can hear: Your child has autism. The parents of one in every 54 American children will receive this news this year, according to the Centers for Disease Control and Prevention (CDC).

Learning that a child has autism spectrum disorder (ASD) affects families in profound ways and can prompt intense initial reactions that are perfectly understandable: fear or panic, guilt or shame, denial or disbelief.

However, some parents are relieved to finally have a diagnosis—relieved because they've suspected it and they've learned that the diagnosis will connect them to treatments that often make a tremendous difference in the child’s development. In either case, it's helpful for parents and others in the child’s orbit to understand what an ASD diagnosis means and how best to approach it.

Start with a few basic facts about the condition:

·      ASD diagnoses are increasing. It’s ten times more likely to be diagnosed today than it was four decades ago.

·      ASD is approximately four times more likely to affect boys than girls.

·      ASD signs and symptoms vary widely, but most children with ASD have trouble in one or more of three basic areas: interacting with the world, communicating with people, and repetitive interests or behaviors.

·      There’s no single identified cause of ASD, though there are a number of underlying factors that make someone more likely to develop the condition. Broadly, these include a combination of genetic, environmental and biological factors. No one is to blame for it.

·      ASD takes many forms and affects different people in different ways. Some with ASD are able to speak fluently but have other difficulties with communication such as linking words with eye contact, facial expressions and gestures. Some may struggle with using the right content and delivery at the right time. The difference between mild and severe ASD is defined by the amount of support the individual with autism needs.

What an autism diagnosis means

An ASD diagnosis challenges many people’s most basic assumptions and expectations about family life. But over time, having a family member with ASD is not as devastating as it may seem at first.

As a parent grappling with this new information, you’ll likely move through a series of stages as you gain clarity about what you’ll be facing. While everyone’s experience differs, the process at its most basic level usually looks like this:

·      First, you’ll likely experience greater awareness of ASD and its parameters; you may find yourself on a fact-finding mission to learn as much as you can about the condition.

·      Then you’ll gain an acceptance of the new reality and an understanding of the ways it affects you, your child, your family and your wider social environment.

·      Next, you’ll come to appreciate that ASD isn’t just about weaknesses and deficits—it’s also about strengths and possibilities that other kids don’t have. It’s not all downside; there’s an upside, too. Some of your child’s successes will be because of ASD, not in spite of it. People with ASD are unique and interesting. They aren’t less than; they’re different from.

·      Finally, you’ll reach a stage where you feel ready to start taking action and advocating for your child. One goal will be to ensure they get the level and types of support they require as they grow and develop. You’ll find ways to integrate the diagnosis into your family members’ lives. As your child grows, your focus will shift toward helping their life be as independent and fulfilling as possible.

For information on first steps you can take, self-care tips, learning to evaluate information, and long-term helpful strategies, continue reading Part 2 of this blog.

Hope Haven serves children with all kinds of challenges and disabilities, including lots of kids with varying forms of ASD. If you’re not already familiar with our programs, including the evaluation and therapy services we offer, call us at 904-346-5100 to schedule a tour and for more information

Continue to New realities after ASD diagnosis–Part 2

New realities after ASD diagnosis–Part 2

NEW REALITIES AFTER ASD DIAGNOSIS–PART 2

In Part 1, you read about autism spectrum disorder (ASD), what it is and what an ASD diagnosis means. Now learn some of the many positive steps you can take for yourself, your family and your child with ASD.

First steps you can take

• Learn. Do some research about ASD to anticipate what signs and symptoms to look for as your child develops—and how to react if they occur. This gives you added confidence and focus. Ask the clinician who provided the diagnosis to give suggestions for high-quality and trustworthy information.  

• Observe and empathize. Since young children can’t always describe their experiences accurately, pay close attention to their behaviors. Watch for subtle cues that help you understand the experience from your child’s perspective. It may help to write down any patterns you notice—maybe use a journal you can refer to. 

• Build a team. Start assembling resources you can rely on as you consider decisions about your child’s therapy and education. The team might include professionals in the medical, therapeutic, education and even legal fields. Look for experience specifically in the autism community.

• Heads-up. To the adults your child interacts with, it may not be clear that your previously undiagnosed child is on the spectrum. Consider sharing the diagnosis so they can adjust their expectations and behavior. That said, if someone stares at your child or makes a judgmental comment about their behavior when you are out in public (such as at a grocery store or restaurant), feel free to ignore them. You can decide with whom and when you share your child’s diagnosis. Provide space and patience for others—we don't know their struggles just as they don't know ours. 

Self-care

Autism isn’t just about your child. Caregivers, including family members, need attention and downtime. Consider these recommendations from people who have navigated the waters you’re in now.

• Prioritize your own needs. Parenting a child with ASD is hard, and it’s not something you should try to do without help. So, take your own needs seriously from the get-go. Self-care places you in a better position to meet your child’s needs. 

• Don’t delay your child’s therapy and intervention. The sooner you implement a treatment program, including individualized activities that strengthen your child’s progress, the sooner you can set up your own support system.

• Request logistical help. Don't hesitate to ask friends, neighbors, family members and others for occasional support. Whether it takes the form of errands, cooking, babysitting or other chores, you’ll find people who are eager to help but don’t yet know how. Don’t be shy about this. 

• Research and join support groups. You’ll meet and compare notes with other parents of kids with ASD. The experience can give you a reliable source of encouragement and a setting where you can share your own fears and emotions freely. 

• Take frequent breaks. As you would with any activity that requires focus, disengage occasionally. Give yourself permission to go out on a date with your spouse/partner or meet up with friends. This isn't selfish behavior, but self-care. Walk the dog, take a quick nap, go for a stroll, or even visit the gym. Your concentration will improve, and so will your outlook.

• Trust your instincts. You know your child’s quirks better than anyone. You may need to push back against well-meaning advice. If it feels wrong for your child, listen to your instincts. If a treatment or method is advertised to offer a “cure” or quick fix, this should ring some alarm bells, as autism is a complex neurodevelopmental disorder.

• Celebrate accomplishments. Find the joy in your child’s successes, no matter how seemingly insignificant, without comparing them to the successes of others. Love your child for who they are. Your child can and will continue to grow and develop. Taking note of each incremental step can be joyful and awe-inspiring.  

Evaluate what you read and hear

There’s a lot of misinformation out there, including sweeping claims about ASD. Maintain a healthy skepticism—especially if you don’t already know and trust the source. For example, you may encounter incorrect assertions like these:

• People with ASD are all intellectually disabled: Not necessarily. ASD is a neurodevelopmental condition. Many have normal IQs or higher.

• People with ASD can’t talk: Not necessarily. Some children with ASD develop speech later than their peers or might speak in an unusual style. 

• People with ASD don’t experience normal emotions: Wrong. They have a full range of emotions but may not have the ability to express them in familiar ways.

• ASD is caused by childhood vaccinations: There is no reliable scientific evidence that vaccinations cause ASD. However, there is reliable scientific evidence that failing to vaccinate a child has led to a rise in preventable diseases.

Long-term strategies

As the newness of your child’s diagnosis fades, you’ll start settling into a routine. Not just the day-to-day logistics, but also an emotional routine. You may still encounter negative emotions even after you think you’ve developed a positive outlook. Consider these tips to stay on track:

• Remain undaunted. There’s a lot of uncertainty about ASD, which can shake your confidence. As your child’s fiercest advocate, arm yourself with the facts and a robust hand-picked support team. You’ve got this.

• Count your blessings. Your child is the same baby you fell in love with, and they'll continue to bring you joy. 

• Short-circuit the blame game. Despite your best efforts, you may catch yourself occasionally, perhaps subconsciously, wondering what you did wrong. Remember there’s nothing you did—or failed to do—to cause your child to have ASD. Repeat as often and as forcefully as necessary. 

• Participate with the ASD community. You’ll draw strength from more experienced parents of ASD kids; other parents with less experience will draw strength from you. We all help each other.

• Share freely. Include family members in as many activities as possible. Siblings and extended family members can be a great support as they share a role in caring for your child with ASD. Consider sharing details about your child’s ASD diagnosis with siblings in an age-appropriate way. 

• Dream differently. Adjust your expectations for your child in ways that align with what’s possible. In your child’s eyes, a victory is still a victory, and that’s always worth celebrating. And hold this thought in the back of your mind: Like all kids, your child with ASD will find ways to surprise and delight you.

Hope Haven serves children with all kinds of challenges and disabilities, including lots of kids with varying forms of ASD. If you’re not already familiar with our programs, including the evaluation and therapy services we offer, call us at 904-346-5100 to schedule a tour and for more information.

For basic facts about ASD and what an ASD diagnosis means, read New realities after ASD diagnosis–Part 1

Early childhood ASD assessments

EARLY CHILDHOOD ASD ASSESSMENTS

In most areas of healthcare, early detection often leads to more effective treatment and better outcomes. That’s common sense and good medicine in general. In the case of autism spectrum disorder (ASD), the concept is critical. Because if a child is on the spectrum, the sooner they can be identified, the sooner they can start receiving specialized resources. 

Those resources can include services like applied behavior analysis (ABA) services, therapies like speech/language therapy, occupational therapy and physical therapy, as well as access to assistive technologies and programs like Early Steps, Agency for Persons with Disabilities (APD), Florida’s Family Empowerment Scholarship, and others.

But there’s no fast, easy blood test that tells doctors if someone has ASD. Diagnosing ASD requires an assessment, performed by a trained clinician, based on the patient’s behavior and other factors. And the behavior of an infant or toddler is hard to analyze. They haven’t even mastered language skills at that age.

Up to now, parents who suspected a child might be showing signs of ASD had to wait months, even years, for an official assessment. That assessment is the document that determines whether the child qualifies for specialized services—and, if so, which ones. So the sooner the assessment can be completed, the better.

Allison Cato, Ph.D., in-house neuropsychologist at Hope Haven

But how do you evaluate a child for ASD if they’re too young to even speak?

Dr. Allison Cato, Ph.D., in-house neuropsychologist at Hope Haven, has perfected a methodology for identifying ASD patients earlier than ever—as early as 18 months.

First piloted at Hope Haven in 2019, the methodology allows staff to complete the ASD evaluation within a week, and be prepared for discussion of results in as little as two weeks. Findings can typically be documented and reviewed with the family two weeks later. That means kids who need those specialized ASD services can get them much sooner, when they can help the most.

Dr. Cato also provides a wide range of other assessments, including IQ testing, psychoeducational evaluations, and comprehensive neuropsychological evaluations. If you suspect a child might be showing signs of ASD or other development issues, or to set up a tour, contact Hope Haven at 904-346-5100.